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The dreaded bleeding bum...


As parents of HD babies we all know about the diaper rashes. I didn't think it would be that bad when Deacon had his bag. I thought, ya I've seen "bad" diaper rash. Not a big deal. Except that it is.
He had his stoma closure and 4 days later the horrid red blotches sprang up, like little angry men. The nurses and doctors kept telling me before his surgery that after I would have to keep applying the barrier cream. There was nothing there and they kept saying, "You MUST apply it EVERY time!!!" I thought ya I will thanks. But nothing prepared me for those angry men. No body told me what to do AFTER the rash appeared. I threw out the barrier creme and started a LLLOONNGG battle with the baby aisle in the grocery store. We spent alot of money trying out everything under the sun. Everybody who had HEARD of a thing called a baby had an opinion on what cream was the only one to buy. Weeks of trying anything that promised any sort of bum cream, came around to me taking him to the clinic. First visit - try Nyastain. Yeast cream. Try for 1 week. The rash will go away in 2 days. Riiiiight. I used it for 2 weeks and nothing. There was a gizzilion little angry men on my baby's bum and 1 SUPER angry baby on his face while I wiped the poop off his toosh. So the 2nd trip to the clinic, the doctor took one look at his bum and prescribed a cream that she had to call 2 other doctors to make sure it was okay to give him. Sorry I threw it out so I dont know what it is. But I used it and there was NO sign of any change good or bad. Then he got the flu and was addmitted to BC Children's Hospital. When we were in there a Dr. Rothstein told me that gastrointestinal patients had been given a special...

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